Lu's News

Please follow the links to keep up to date with my blogs for Marfan Trust    https://www.marfantrust.org/articles/201-the-critique-of-my-marfan-physique https://www.marfantrust.org/articles/212-the-critique-of-my-marfan-physique-part-ii   https://www.marfantrust.org/articles/the-critique-of-my-marfan-physique-part-iii https://www.marfantrust.org/articles/the-critique-of-my-marfan-physique-part-iv https://www.marfantrust.org/articles/the-critique-of-my-marfan-physique-conclusion   https://www.marfantrust.org/articles/lucy-s-blog-the-critique-of-my-marfan-physique-part-vi https://www.marfantrust.org/articles/lucy-s-blog-the-critique-of-my-marfan-physique-part-vii   https://www.marfantrust.org/articles/lucy-s-blog-part-8 https://www.marfantrust.org/articles/lucy-s-blog-part-9  

Over the last few years, I've been very open on Blogger about my life with Marfan syndrome and numerous health conditions, but I haven't been quite as forthcoming with those around me because if I'm to be honest, I struggle to fully express the significant impact that chronic illness/health conditions have on my day to day life. I don't look like someone with chronic illnesses. I don't use a wheelchair, a stick or any disability aids, so I'm afraid of telling some people in case they think I'm over dramatising it. But that is far from the truth. I've lived with chronic pain for a long time now, gradually building up and becoming more widespread over the years. I've learnt to become good at pushing my unpleasant physical sensations aside to get on with my every day life though, so no one would ever guess it. No one would know (unless you are my Mother) that on a typical day I experience several different types of pain and discomfort throughout my body...