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I love arts, crafts and being creative. I love photography, nature and boho vibes. Crystal collector with bright eyeliner and tattoos. Trying my best to battle through this life with Marfan syndrome and chronic illness.

Drawing life with Marfan Syndrome

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- April 09, 2026

Drawing Life with Marfan Syndrome | Marfan Trust

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Lualexandra: Just drifting my way through life with Marfan syndrome and chronic illness. Lover of arts and crafts. Crystal collector and nature lover. The one with bright eyeliner and tattoos. Trying my best to raise awareness of Marfan syndrome.

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awareness
body shaming
chronic illness
connective tissue
Dental issues
diagnosis
feeding tubes
feelings.
gastro
GI tract

hypermobility
invisible conditions
invisible disabilities
malnutrition.
Marfan
marfan syndrome
Marfan Trust
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scoliosis
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